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Finding Hope & Truth:  A TBI Survivors’ Guide to the Top 10 Most Helpful Websites Rooted in Personal Experiences of Survivors and Their Loved Ones 

  • Writer: Emily Fry
    Emily Fry
  • Nov 13, 2024
  • 4 min read

Finding Hope & Truth



:  A TBI Survivors’ Guide to the Top 10 Most Helpful Websites Rooted in Personal Experiences of Survivors and Their Loved Ones 


Several websites and organizations are run by traumatic brain injury (TBI) survivors or have been founded by them to offer support, raise awareness, and provide resources for others living with TBI. These websites often feature personal stories, provide educational materials, and create communities where people can connect, share experiences, and access help. Here are a few notable ones:


1. The Brain Injury Network


• About: This website is run and written by TBI survivors and clubhouse members.  Brain Injury Network ha This brain injury clubhouse is  BIAA is an important resource for TBI survivors and their families. It offers a wealth of information on recovery, resources for advocacy, and state/local support programs. Survivors often contribute to its initiatives and awareness campaigns.

• Founded by: a speech and language pathologist and TBI  survivors.  Home to the only brain injury clubhouses in Texas, Brain Injury Network or BIN for short serves adult survivors living in 29 different cities.  Check out their podcast, hosted by TBI survivors for survivors and their loved ones, at https://www.thebind.org/bindwaves. 


2. Brain Injury Hope Foundation


• About: This website was created by TBI survivors to support others going through similar challenges. It offers personal stories, resources, and a platform for survivors to connect.

• Founded by: It was established by Robyn and Dan Rinker, both of whom have survived traumatic brain injuries and who aim to provide hope and support to others facing similar struggles.


3. The Love Your Brain Foundation


• About: Founded by Kevin Pearce, a former professional snowboarder who suffered a severe TBI during training in 2009, Love Your Brain offers programs designed to promote brain health and healing for TBI survivors. Their programs focus on mindfulness, yoga, and other recovery techniques.

• Founded by: Kevin Pearce and his family after his own TBI, to raise awareness and help others on their recovery journey.


4. TBI Survivors Network


• About: The TBI Survivors Network is a community created by and for survivors of traumatic brain injuries. It offers resources, support groups, and information on various aspects of life after a TBI, such as cognitive rehabilitation and mental health.

• Founded by: TBI survivors who wanted to create a platform for mutual support and to help others navigate their recovery journeys.


5. Brain Injury Recovery Network


• About: This organization is dedicated to improving the lives of brain injury survivors by providing them with tools, support, and access to vital resources. The website includes survivor stories, educational materials, and various forms of advocacy.

• Founded by: This website is run by Terry Moore, who is a TBI survivor and has worked extensively in helping other brain injury survivors with their recovery and reintegration.


6. TBI Hope and Inspiration


• About: This website provides inspiration, resources, and personal stories of TBI survivors. It is designed to help others living with brain injuries understand that recovery is possible. The site also offers tips for improving quality of life and living with a brain injury.

• Founded by: Ruth D. Berman, a TBI survivor herself, who uses her personal experiences to inspire others.


7. Concussion Legacy Foundation


• About: Founded by Chris Nowinski, a former WWE wrestler who sustained multiple concussions, the Concussion Legacy Foundation focuses on TBI, CTE, and concussion education. It provides resources for athletes, parents, and caregivers, as well as research advocacy and support for concussion survivors.

• Founded by: Chris Nowinski, who had his own TBI struggles, particularly related to concussion and post-concussion syndrome.


8. The TBI Network


• About: A comprehensive resource for those living with TBI, the TBI Network offers practical advice, mental health support, and tools for survivors and their families. It’s designed to help people navigate the challenges of recovery and understand the long-term effects of TBI.

• Founded by: TBI survivors who have worked to create an online support platform to assist others through recovery.


9. Brain Injury Voices


• About: Created by Michelle L. O’Neill, a TBI survivor, Brain Injury Voices provides personal accounts, resources, and advocacy for survivors. Michelle shares her own story and has created a space for others to express their challenges and triumphs.

• Founded by: Michelle L. O’Neill, who was inspired to help other survivors after her own TBI experience.


10. A Head for the Future


• About: This website is part of the American Brain Foundation and is dedicated to raising awareness about brain injury, particularly TBIs. It includes personal survivor stories, resources, and links to professional services.

• Founded by: A collaboration between medical professionals and TBI survivors to promote education and advocacy for brain injury recovery.


Conclusion:


These websites are not only a source of inspiration for TBI survivors, but they also provide crucial resources for others living with brain injuries. Many of these platforms are run or co-founded by individuals who have experienced a TBI firsthand, offering unique insights and offering a community for others facing similar challenges. These sites also promote awareness, provide valuable resources, and advocate for better care, research, and treatment for traumatic brain injury survivors.

 
 
 

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